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Home > Knowledge & support > Resource hub > “Mum, I promise I’m going to do something to fix type 1.”
I first learned about diabetes in school. I remember being surprised that we’ve known about type 1 diabetes for over a hundred years, yet patients must still give themselves insulin to survive. I was curious about why that might be, even though I was only 15 at the time and didn’t have diabetes.
I already had an interest in medical research when I found myself in hospital aged 17 diagnosed with type 1. I remember sitting in that hospital bed with my mum. She was very sad about it and didn’t understand. She said: “Why have you got it? Why do people get it?” And I said: “Well, why not me? I’m interested in this, and I promise I’m going to do something to fix it.” From that moment I dedicated my career to becoming a scientific researcher.
It started with one promise to my mum. She isn’t a scientist, so I had to help her understand. I’m incredibly invested in showing that science isn’t complex and inaccessible. Advocating for people with type 1 is also hugely important to me and making those without diabetes aware of this invisible disability. I want people to understand that, while type 1 doesn’t hold us back, I’m always thinking about a hundred different diabetes-related things.
It’s difficult to understand what it’s like to have type 1. That’s why getting patients’ perspectives is crucial. It helps guide research questions. The people with the disease you’re trying to cure are the best people to ask what they want from the science.
I think being a researcher with type 1 diabetes gives me a different perspective. I have a different view on life and what’s important – specifically, what’s important within research. It helps me interpret data differently. When I analyse data from continuous glucose monitors, the readings are more than just numbers to me. I can feel what the patient is experiencing and the quality of life that goes along with it.
My favourite fact is that when someone without type 1 even just looks at food, it triggers their pancreas to start making insulin. It won’t release this insulin until the person eats, but their body makes it so that it’s ready for when their blood glucose rises. The body is absolutely amazing.
Without research, we wouldn’t even have insulin. We wouldn’t be alive. I believe people with type 1 should care about the research that impacts them. I understand people with type 1 may get frustrated hearing a cure is on the horizon, but we must remember that science doesn’t happen in a day. So, continually funding research gives us the potential to keep improving the lives of people with type 1 and ultimately cure it.
I’m moving to Canada to work in the Alberta Diabetes Institute, which hosts many researchers funded by Breakthrough T1D UK. There I’ll be trying to understand what the best level of functioning is for the insulin-producing cells and how best to measure it. This is really important to understand for when we research ways to treat or even prevent type 1 diabetes. During my PhD, my supervisors were funded by Breakthrough T1D UK, and I helped with their projects. I also work on data that is Breakthrough T1D UK-funded, so Breakthrough T1D UK is vital for my research.
Although it would be amazing to have a cure that makes me no longer have type 1, it’s a huge part of who I am. While it doesn’t define me, my whole life is now dedicated to type 1 diabetes research. It guided me down the route I am on and my career. I’m really thankful for it.
Megan Neville was diagnosed with type 1 diabetes at three years old. Now a graduate of the Royal School of Needlework, Megan shares her experiences of growing up with type 1 and how it became the topic of her sculptural handbag embroidery project: Ordinary Oddness.
Eden Valk was diagnosed with type 1 diabetes while she was still in school, navigating classes, friendships and everyday life. Here, she shares five of the most important lessons she’s learned along the way.
Manisha Vadgama shares what she has learned on her own pregnancy journey so far, from getting the tech right to making sure she has the right people around her.
Researcher, Dr Paidamoyo Katsande, shares why she's so passionate about curing type 1 diabetes and how Breakthrough T1D supporters are bringing us closer to a cure.
