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Home > About Breakthrough T1D UK & our impact > Our research > Information for researchers > Including people affected by type 1 diabetes in your research
At Breakthrough T1D UK, we believe all individuals affected by type 1 diabetes (T1D) should have the opportunity to take part, be involved, or hear about the important T1D research being carried out. That’s why we are dedicated to supporting researchers with their Public and Patient Participation, Involvement and Engagement (PPIE) activities.
With our valued and dedicated supporter network, Breakthrough T1D can help you:
To submit a request, please fill out our PPIE request form, and we will be in touch as soon as possible.
When individuals are recruited to take part in research. For example, this may include providing tissue or blood samples or taking part in surveys or interviews. It is important for people with lived experience to take part in research to ensure it is built upon reliable and enable researchers to make new breakthroughs and develop new treatments to help alleviate the burden of T1D.
When individuals are recruited to actively contribute to research using their lived experience. This can take place during the design or idea phase of a research study, or throughout the project. For example, using an advisory panel to review documents and/or trial/research design. Involving people with lived experience of T1D in research benefits both researchers and people with T1D by improving the quality, impact and relevance of the research.
The sharing of information about research and scientific findings with the public and/or patients. This can be done via presentations, publications including lay summaries, or via websites and social media. Sharing the findings of your research helps to raise awareness of T1D and develop a better understanding of the challenges people living with T1D face. It also helps make science less exclusive so that everyone can learn about it and benefit from it.
Diverse and inclusive research is essential in ensuring patient safety, maximising research impact, and improving health equity for all individuals living with T1D. Throughout all aspects of PPIE it is important to consider who should take part, be involved or informed, how you can best facilitate this, and what challenges you might face. To find out more on how to go about this and access other helpful resources, please see below.
Lay summaries/language
Equity, diversity and inclusion
Good practice guidelines on the recruitment and involvement of public members on trial and study steering committees | NIHR
Share your involvement opportunity on the NIHR forum, or view other helpful guides and document below.
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From help to accessing datasets and biological samples to involving patients in your research, find out what Breakthrough T1D can offer you.
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