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JDRF has now rebranded to Breakthrough T1D.
Our name has changed, our mission has not.

Shaping Clinical Trial Participation in Type 1 Diabetes

Join one of our focus groups to help us understand perceptions and improve participation in type 1 diabetes (T1D) clinical trials in the UK.

Anonymous circle of people sat in chairs, shown from waist down, in a communal space.

Clinical trials are an essential part of the research process. Without them, we cannot bring breakthroughs, such as new therapies or technologies for T1D, to the people who need them. But the number of people participating in clinical trials in the UK is going down. We need your help to understand why.

This project will gather insights from people living with, and affected by, T1D, health care professionals and T1D researchers.

At the moment, we are looking for volunteers living with, or affected by, T1D to help with the first stage of this project.

What will I be doing?

You will attend a 90-minute, online focus group with seven to nine other participants. The focus groups will take place in October/November 2025 (the date will be confirmed based on your availability).

In the focus group we will ask you to share your thoughts and experiences of type 1 diabetes and clinical trials.

More information on the process can be found in the participant information sheet [PDF].

Who can take part?

No previous experience or knowledge of clinical trials is required. To be eligible to take part in the lived experience focus group, you must:

  • Live with T1D, or
  • Care for someone who lives with T1D, or
  • Be at risk of developing T1D*, or
  • Care for someone who is at risk of developing T1D*,
  • and Live in England, Scotland, Wales or Northern Ireland.

*determined by a specialist screening programme or your health provider.

Where can I find out more information?

More information is available on our participant information sheet [PDF].

You can also contact us at researchcommunications@breakthrought1d.org.uk.

How do I apply?

If you’re interested in taking part, please complete our focus group application form by Wednesday 1 October 2025.

The form contains questions about you and your experience of T1D and clinical trials. It should take approximately five minutes to complete. If we receive a lot of responses, we may use your answers as part of a selection process. This is to ensure we gather insights from a diverse group with different experiences.

Thank you for your interest in this project.

This project has been developed by Breakthrough T1D with funding from Vertex Pharmaceuticals, who has had no input or control over the contents.

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