Our resource hub is home to a wealth of articles, stories and videos about managing and living with type 1 diabetes.
Place your order for our free information packs that support adults and children who have been recently diagnosed.
Our researchers are working on different ways to develop a cure for type 1 diabetes - from growing insulin-producing beta cells in labs to hacking the immune system.
Learn about the technologies that can deliver insulin automatically when needed. And discover the next generation of insulins that are currently being developed.
You could win a cash prize of up to £25,000 when you play the Breakthrough T1D lottery. As well as the chance to win great prizes, you’ll also help fund our research to find a cure for type 1 diabetes.
Choose from a selection of modern and traditional designs in single or twin packs to support type 1 diabetes research this Christmas. Shop online and get fast delivery.
The announcement is the biggest treatment breakthrough for type 1 diabetes since the discovery of insulin.
This World Diabetes Day, we’re inviting you to celebrate by wearing your most joyful, whimsical and downright wonderful outfits.
We provide a wealth of information and free resources to help you support and empower your patients or students.
Take our free course for schools to learn more about supporting pupils with type 1 diabetes in educational settings.
JDRF has now rebranded to Breakthrough T1D. Our name has changed, our mission has not.
Home > Knowledge & support > Resource hub > An attempt to listen: The National Diabetes Experience survey
Type 1 diabetes care has been through somewhat of a revolution, especially with the explosion of technology, and the exciting prospect of wider use of hybrid closed loops in many people living with type 1. However, it would be wrong to deny how much the patient voice has had an impact on this progress.
The use of public forums such as social media, blogs, podcasts acts as an insight into the type 1 community. Engaging with these platforms over the last eight years has helped me understand what people living with type 1 have asked for, the challenges they face, and what can be done on a day-to-day basis and over time via policy levers. I am concerned that voices are still not heard enough, with policy teams perhaps expressing support for some aspects without taking meaningful action.
In 2022, an idea was formed to bring a group together involving people with diabetes to help co-design the National Diabetes Experience Survey, steered by Dr. Sophie Harris. The group has worked to listen to many voices and design a survey which hopefully will encompass wide areas and enable many living with diabetes to share their views, feedback on issues, and steer national policy accordingly.
The cautionary tale with all of this as ever sits in how much is translated into policy as that inherently dictates whether future versions of these data sets are a genuine driver of change, rather than just vehicles for collecting numbers.
From March 2024, around 105,000 people living with type 1 or type 2 diabetes will be invited to take part in the National Diabetes Experience Survey. If you get the letter or questionnaire, I encourage you to fill out the survey so that you can be part of the exercise to steer policy in the national diabetes team going forwards. It is an effort to genuinely listen to those the national team in diabetes serve, so your help would be most welcome.
