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Home > Knowledge & support > Resource hub > “I’m not checking my phone constantly anymore”
“We called for an ambulance in the early hours of Christmas day. The paramedics smelt her breath and asked if she was diabetic and I said not that I know of. They did a finger prick an then we got blue lighted off to our local hospital where Tahlia was admitted into intensive care. She spent Christmas day and about five days afterwards in the hospital.
Life went from being carefree, worrying about whether Tahlia has her lunchbox and things that don’t really matter, to having to carry around this really valuable medical kit. Life was quite stressful, and everyone kept saying to me ‘I don’t know how you do it’. I found that really overwhelming. I was just doing it because I had to. There are real consequences if we forget things now.
I don’t want to be a nag or an overbearing mum but I want to make sure she’s safe so I’m always asking questions, looking at the device, looking at the phone and looking at levels. Sometimes when Tahlia goes low, she has a seizure. One day we had given her a correction, which resulted in her having a seizure and I felt terrible. Tahlia was trying to make me feel better about it but I’m the mum – she shouldn’t have to do that. You’re always wondering if you’re making the right decision.
Type 1 technology came about a year after Tahlia’s diagnosis. We had the Libre first and then we moved onto Dexcom. Glucose monitors changed things completely for us. I would never want to go back.
Over the summer holidays we started transitioning responsibility to Thalia to manage her own levels. Previously, Tahlia’s levels were on my watch, my two phones, my tablets and now it’s just on my phone. I don’t want Tahlia to kick me out completely, but she is 11, so she’s now carb counting herself using the full Carbs & Cals app and changing all of her devices herself.
We recently went to a theme park. It was very hot and I told Tahlia that I thought she was going to go high. I wanted to give her a correction. Tahlia said that she didn’t think she was going high and asked me to trust her. She came down by herself and that made me realise that she knows her body and has hypo awareness. I wouldn’t override a decision that she has made now. I trust her.
I found out about HCL through LinkedIn. There was a NICE consultation that I completed and I started taking an interest after that. We wanted it as it felt like the next stage to us.
Tahlia has had a few serious hypos and has even fallen over in the road. I wanted her to have the best possible introduction to secondary school, which started in September 2023. If we could take a tiny bit of that stress away, we wanted to do it.
The set up, which was virtual, couldn’t have gone any better. We’re now a week in and we’re having to trust the system and not do anything. There are positives already. I’m not checking my phone constantly anymore; I’m sleeping though without one ear open. We’re just about to have dinner but she’s high at the moment and if we were on the old set up, we’d be trying to do something about this but right now we’re doing nothing.
I find it incredible to watch Tahlia’s levels going up and down and up and down by themselves. The technology is amazing. We’re definitely not going back.
I would recommend this 100% to others. I think everybody should be able to access this tech free of charge when it’s needed.”
“It’s good but it doesn’t do everything
One thing that surprised me was that when you go low, HCL doesn’t bring your blood sugars up again. You have to do that yourself! The other day I went low, I thought it should have bought me up, so I didn’t do anything about it I didn’t have any glucose. I was surprised that I had to treat myself.
I don’t have to treat myself in front of others
When I had to manage my type 1 in public before, people would look at me and ask what I was doing. Now I can just look at my Apple watch and, unless I’m low and need glucose I don’t have to do anything.
I don’t like having to explain what type 1 is all of the time over and over again. I don’t like people noticing. I know how to explain it, I just don’t like doing it, especially to younger kids who don’t get it. The hybrid closed loop system means that I can keep it to myself a bit more.”
Find out more about hybrid closed loop technology, also known as the 'artificial pancreas'
Find out about the devices that help you take the right amount of insulin at the right times, and devices that help you measure your glucose levels throughout the day
Megan Neville was diagnosed with type 1 diabetes at three years old. Now a graduate of the Royal School of Needlework, Megan shares her experiences of growing up with type 1 and how it became the topic of her sculptural handbag embroidery project: Ordinary Oddness.
Eden Valk was diagnosed with type 1 diabetes while she was still in school, navigating classes, friendships and everyday life. Here, she shares five of the most important lessons she’s learned along the way.
Manisha Vadgama shares what she has learned on her own pregnancy journey so far, from getting the tech right to making sure she has the right people around her.
Researcher, Dr Paidamoyo Katsande, shares why she's so passionate about curing type 1 diabetes and how Breakthrough T1D supporters are bringing us closer to a cure.
Our research is improving the lives of people with type 1 and making strides towards a cure. We’ll keep pushing until we make type 1 diabetes a thing of the past.
