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Home > Knowledge & support > Resource hub > What it’s like being a parent contributor to research
Amanda and her daughter Bella.
Being a parent contributor to the ELSA study involved several jobs at each stage of the project.
Before the project even began, I was a co-applicant for the funding for the study. Being a co-applicant meant I had to read through and comment on the researchers’ application for joint funding from Breakthrough T1D UK UK and Diabetes UK.
I played a big part in helping design the website for the ELSA Study. This included the wording and graphics on the website as well as the consent form. I then test ran the website to make sure it all worked properly and feed back to the research team.
Once the study was up and running, I signed my three children who don’t have type 1 up for the ELSA study both to test them for type 1 and test the system for issues. Throughout the study, I had regular video calls with other parent contributors and the research team to discuss the progress of the study. I’m still helping with the next steps of the ELSA study.
My younger brother Terry has type 1, so I had grown up with the condition in my life. But it still hit like a bomb when my daughter was diagnosed with type 1. If a parent knows their child is at a higher risk of developing type 1, they can pre-arm themselves with information so that it isn’t such a whirlwind of information when the diagnosis comes.
There are many ways to help research into different aspects of type 1. I’d recommend looking into it to see if there are any opportunities that interest you because it can be very rewarding. Another parent had posted about the ELSA study on one of the type 1 diabetes Facebook groups that I am a member of. So, I emailed a member of the research team for more information and joined the team as a volunteer.
I had looked into volunteering a few times, but I couldn’t find anything that I could commit the time to. Being a parent contributor fitted nicely around my life as a working mum of four kids. I was particularly excited about the ELSA study as I felt it could be life-changing for families.
I enjoyed the process of helping set up the study and watching it evolve. When the ELSA Study went live on World Diabetes Day 2022, I felt very proud that I had helped the study evolve. I found it really interesting to learn about the science behind the screening test for type 1 and how it all worked. I have really enjoyed this process and would be interested in being involved in another one.
My daughter Bella and I are raising money for Breakthrough T1D UK by taking on the Climb 1 for Type 1 challenge. I can see how the technology and support for people with type 1 diabetes has changed since I was a child, when my brother was diagnosed, and it’s amazing. Raising money helps fund research projects to improve the lives of people with type 1 with better support through advances in technology and science.
MJ works full-time as a chef in London and has recently started volunteering as an assistant to our Events and Supporter-Led Fundraising team.
Bob has lived with type 1 diabetes for 10 years and is one of our dedicated Community Connector volunteers.
Megan Neville was diagnosed with type 1 diabetes at three years old. Now a graduate of the Royal School of Needlework, Megan shares her experiences of growing up with type 1 and how it became the topic of her sculptural handbag embroidery project: Ordinary Oddness.
Eden Valk was diagnosed with type 1 diabetes while she was still in school, navigating classes, friendships and everyday life. Here, she shares five of the most important lessons she’s learned along the way.
Our guides can help provide you with information and support in your journey to living well with type 1 diabetes.
Find out more about the ELSA Study, which Amanda helped design.
Find out how you get get involved in type 1 diabetes research.
Find out about the different devices that can help you manage your blood glucose levels.
