Our resource hub is home to a wealth of articles, stories and videos about managing and living with type 1 diabetes.
Place your order for our free information packs that support adults and children who have been recently diagnosed.
Our researchers are working on different ways to develop a cure for type 1 diabetes - from growing insulin-producing beta cells in labs to hacking the immune system.
Learn about the technologies that can deliver insulin automatically when needed. And discover the next generation of insulins that are currently being developed.
You could win a cash prize of up to £25,000 when you play the Breakthrough T1D lottery. As well as the chance to win great prizes, you’ll also help fund our research to find a cure for type 1 diabetes.
Invite your friends, family, colleagues or clients to an exceptional black-tie event in the heart of London. Every ticket, every bid, every moment helps us move closer to a cure.
Our ambitious new roadmap is aimed at driving significant advancements in type 1 diabetes research, treatment, and care.
Join the type 1 diabetes community and come together, raising awareness and vital funds for T1D.
We provide a wealth of information and free resources to help you support and empower your patients or students.
Take our free course for schools to learn more about supporting pupils with type 1 diabetes in educational settings.
JDRF has now rebranded to Breakthrough T1D. Our name has changed, our mission has not.
Home > Knowledge & support > Resource hub > “I would urge other families in Northern Ireland to get their children screened for type 1”
I have three boys; my middle son, Shane, lives with type 1, and I regularly think about whether my other two sons may develop type 1 too. Now that the ELSA Study is available in Northern Ireland means that we can now find out if my youngest son, Zach, is likely to develop type 1 and, if so, start preparing for it.
The ELSA study is a research project co-funded by Breakthrough T1D UK, which aims to screen 20,000 children aged 3-13 to find children at high risk of type 1 diabetes. The trial was launched in England, Wales and Scotland in on World Diabetes Day 2022 and in October 2023, the researchers expanded the screening to include Northern Ireland.
As soon as I found out that screening is now available in Northern Ireland, I reached out to the ELSA team here in Northern Ireland and ordered a test kit, which shortly arrived at my home. Zach has autism, so the option to do the test at home removed the barrier of travelling to a centre. A few blood pricks later and we had a small sample of blood to send back to the ELSA team’s lab to analyse.
We aren’t sure yet if Zach will test positive for early signs of type 1, but if he does, it will give us a chance to start preparing for his potential diagnosis. We want to avoid what happened to Shane happening to Zach.
When my son Shane was rushed to hospital in 2014 and diagnosed with type 1 diabetes, we had no idea what to expect. Seeing my seven-year-old hooked up to all those machines, surrounded by nursing staff in a hospital bed will be forever etched in our minds. He was on the cusp of going into diabetic ketoacidosis (DKA) a potentially fatal condition.
Having no previous experience of type 1, we didn’t know what was causing his extreme thirst and weight loss, so we guessed it could be all the judo he was doing. If we had recognised these were symptoms of type 1 that day would not have turned into the emergency situation it was.
If the ELSA study shows that Zach has early signs of type 1, we would have the opportunity to develop a plan around managing type 1 and autism. Zach’s autism means he has sensory issues, so insulin injections and type 1 diabetes technology may be challenging for him. We may also face difficulties around hypo/hyper awareness and would need support around his care. Having advanced warning of a diagnosis of type 1 would allow us to prepare him by practicing using diabetes equipment. Preparation is key for our family, and especially for Zach.
Since Shane’s diagnosis, we’ve shared my knowledge and experiences with other families across Northern Ireland. I want other parents to have the tools to keep their children safe and possibly avoid a similar situation to ours with Shane. I share my knowledge through my role as Community Content and Information Lead at Breakthrough T1D UK UK. I also run the T1 Club, a group for young people with type 1. Through our network of parents, we will promote the ELSA study as part of our work raising awareness about the signs and symptoms of type 1 diabetes.
Sign up today, wherever in the UK you live.
Find out about the signs and symptoms of type 1 and what to do if you spot them
Find out about the technology that can help you manage type 1 and what is available on the NHS
Find out about the work we're doing to prevent type 1 diabetes
In 2024, Mason Barnaby was asked by Instagram influencer Zachery Dereniowski if he would like $1,000 or a ticket to a baseball game. His response – to see the baseball – went viral. We caught up with Mason to find out how T1D brought with it a new favourite sport.
Living with T1D since 1971, Sarah has witnessed a revolution in care and technology. But as she gets older, she is concerned about the lack of knowledge and understanding of T1D in care settings.
MJ works full-time as a chef in London and has recently started volunteering as an assistant to our Events and Supporter-Led Fundraising team.
Bob has lived with type 1 diabetes for 10 years and is one of our dedicated Community Connector volunteers.
Our research is improving the lives of people with type 1 and making strides towards a cure. We’ll keep pushing until we make type 1 diabetes a thing of the past.
