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Home > Knowledge & support > Resource hub > What it’s like being screened for type 1 diabetes
Clare has three daughters, 16-year-olds Lauren and Sophie and 14-year-old Emily. Sophie has type 1 and Emily was screened for type 1 in the ELSA study when she was 13. The ELSA study is a project Breakthrough T1D UK are co-funding which is screening children aged 3-13 in the UK for type 1 diabetes.
In this blog, Clare shares her daughter’s experience of taking part in the ELSA study.
I decided to get Emily screened for type 1 diabetes as Sophie’s diagnosis was a shock for us. We wanted to know if she had a raised possibility of developing type 1 so that we could be prepared. Sophie was diagnosed in diabetic ketoacidosis (DKA), and we knew that if Emily tested positive, the study team would help us to prevent this happening to her too.
The test kit arrived in the post and was very simple to understand. It contained everything we needed. We pricked Emily’s finger with the blood lancet and filled four small circles on the test sheet with drops of her blood. We let it dry then packed it up in the provided envelopes and popped it straight into the post. The test took no time at all, so it was very easy taking part in the ELSA study.
We weren’t worried about taking part in the study because it seemed a straightforward process. Emily didn’t seem phased about being screened. The finger prick initially made her a tiny bit anxious, but she soon overcame this. Sophie supported Emily going through the trial, talking her through the finger prick. The wait for the results was a bit nerve racking, but we received the results by text first then received a letter. Gladly Emily was negative.
Find out more about the ELSA study.
Sign up to the ELSA study to be screened for type 1 diabetes.
UK children aged 3-13 can be screened by the ELSA study, whether they have a relative with type 1 diabetes or not. A platform called INNODIA runs a screening programme for people aged 1 – 45 years who have a parent, sibling, or child with type 1 diabetes. Find out more about INNODIA and sign up for their screening study.
Our guides can help provide you with information and support in your journey to living well with type 1 diabetes.
Find out more about the ELSA Study, which Amanda helped design.
Find out how you get get involved in type 1 diabetes research.
Find out about the different devices that can help you manage your blood glucose levels.
Living with T1D since 1971, Sarah has witnessed a revolution in care and technology. But as she gets older, she is concerned about the lack of knowledge and understanding of T1D in care settings.
MJ works full-time as a chef in London and has recently started volunteering as an assistant to our Events and Supporter-Led Fundraising team.
Bob has lived with type 1 diabetes for 10 years and is one of our dedicated Community Connector volunteers.
Megan Neville was diagnosed with type 1 diabetes at three years old. Now a graduate of the Royal School of Needlework, Megan shares her experiences of growing up with type 1 and how it became the topic of her sculptural handbag embroidery project: Ordinary Oddness.
